Patient-Focused and Connected Clinical Trials: A New Rare Disease Paradigm

Conducting clinical trials in rare patient populations poses many unique and challenging obstacles to successful clinical drug development.  Traditional clinical research paradigms – where clinical trials are designed without regard for patients or real-world applicability – are costly, lengthy, archaic, and unsustainable.  A novel paradigm is needed that ensures clinical trials are designed in a patient-focused manner, and where clinical trials are brought directly to patients, democratizing clinical trial access for all.  By treating patients as partners – and as the ultimate consumers – we can create a patient-focused and connected clinical trial paradigm that reduces the burden of clinical trial participation and accelerates clinical drug development.
Presented by
Scott Schliebner
Senior Vice President, Center for Rare Diseases, PRA Health Sciences

Mr. Schliebner is a clinical development executive with a 25-year background focused on rare diseases, innovation, and patient-focused approaches to drug development.  He is passionate about reducing the burden of clinical trial participation and leveraging novel technologies to bring new therapies to patients faster.  Mr. Schliebner also serves as the Co-Chair of Global Genes’ Corporate Alliance, has served on the Board of the Lymphoma and Leukemia Society, and serves on several rare disease panels and committees.  He holds a Master’s Degree in Public Health (MPH) from the University of Utah School of Medicine, and completed a Graduate Research Fellowship at The National Institutes of Health.

Jeffery Doten
Professional Services Project Manager. Medrio

Jeffery Doten is a Professional Services Project Manager at Medrio. Jeffery is an educator, health promotion specialist, and technology enthusiast. He has a Public Health background and has worked in technology since 2008. Over the last 4 years, his focus has been on Clinical Technology software, working with EDC and IWRX platforms to help studies build software, stay on schedule and collect great data. At Medrio, Jeffery’s primary responsibilities center on user education and custom project management.

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